Takes place Saturday, September 10th at Doubletree by Hilton Phoenix- Tempe

Tempe, Arizona (August 10, 2022) – The Arizona Chapter of the Huntington’s Disease Society of America (HDSA) will host the Celebration of Hope Gala on Saturday, September 10th at 6:00 PM at Doubletree by Hilton Phoenix- Tempe. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families. 

“This is a great opportunity for families to get together and give the space and time for people to connect who otherwise may be feeling isolated, alone, overwhelmed by the stress of HD and its effects,” said Jennifer Perks, HDSA’s Arizona Chapter President. 

The Celebration of Hope Gala is one of the flagship events organized by HDSA’s volunteer-led Chapters and Affiliates nationwide to recognize those who have made an impact in their community while inspiring others to join the fight against Huntington's disease.  

For more information about the event, please contact Jennifer Perks (arizona@hdsavolunteer.org). Online registration and donation can be found at ARIZONA.HDSA.ORG/COH 


Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA. 


Matthew Santamaria

Communications Manager

(212) 242-1968 ext. 204